Ultimately, healthcare should meet the needs of the people it is designed for. One way of measuring this is using patient-reported outcome measures (PROMS). These tools capture the patient’s perspective and have been described as demonstrating the unobservable effects of therapy. Patients can record changes they identify as meaningful from therapy. The aim of this study was to systematically identify what English-validated, condition-specific PROMs are available across adult speech and language therapy practice areas and assess their measurement properties, usefulness, and user-friendliness. This scoping review identified 97 papers describing 71 PROM tools; 18 PROMS were for voice disorders, 14 for swallowing difficulties, 11 for aphasia, eight for fluency, four for motor speech disorders, three for laryngectomy, two for TBI-related cognitive communication disorders and 11 were cross disorder. The authors emphasise the need for PROM tools that are specifically designed and validated for people with the communication disorders they study, as generic measures are insufficient for these populations. PROMS are an increasingly useful method of capturing the impact of complex interventions, such as speech and language therapy, both in the research and clinical context.
Demonstrating unobservable effects of therapy through PROMS: a review
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